The Great Escape

After 9 1/2 days, I made it home last Thursday. I went back yesterday for my follow-up appointment and had my breathing test, which showed my numbers up around 27%. This was a good sign, so they decided to take my iv out, one less thing to do! I am back on the steroid, and it was decided that they will keep me on it for about a month. The key is to see how I do without the iv antibiotics, and see if the steriod was making me feel better before going in or if it was just timing with the infection flaring up, and ending the steriod use at the same time. So, I guess if I feel good for the next month, that's a good sign, but the truth will be when they discontinue the steriod. Since my appointment went pretty well, they weren't hounding me to activate myself for transplant yesterday. It will be up to me to decide when I'm ready to activate. While the transplant is a good thing, there's always a chance of complications, so it's better to put it off as long as possible. As long as I'm living comfortably and able to do everyday things (work, cook, take care of myself) then it's up to me to say when. Obviously, if they see my health decreasing (even if I feel okay) they will advise me it's time to go active. I did do another walk yesterday to determine my oxygen levels, and unfortunately, my 0xygen sats went into the 80's again. This means that I should be on oxygen most of the time, unless I'm sitting. At night I'm required to wear it also, since the sleep study reflected my sats in the low 80s. Luckily, the guy delivered my tank today and it fits perfectly inside the closet in my spare bedroom, and the hose reaches into my bedroom, so I can close the door and no one knows it's there :)